The doctor called this morning to tell me that she got the blood work back and was able to review the reports. This test does confirm that she does have hereditary spherocytosis. We will meet with the doctor again on the morning of July 9. They will go over with us her life long "plan" and give us more information about this disorder. They will do a quick finger prick to do another CBC. She will have to go atleast annually to Children's to have blood work done and to check her spleen.
Now the mystery question is...Who in our families has it, but has not been diagnosed??????????!!!!!!!!
What questions do you have about this disorder? They might be one's that we didn't think about and might be good to ask the doctor at our next appointment. Thanks!
For more info on spherocytosis